If you are interested in getting involved in any of these studies, please visit the Study Sites page to find a location near you and contact the study coordinator listed.
Enroll-HD is the world’s largest observational study for Huntington’s disease families. It monitors how the disease appears and changes over time in different people in a real world setting. Enroll-HD aims to enhance understanding of HD, support clinical trials, and improve clinical care for HD patients.
Who can join?
Anyone from an HD family, including spouses/partners of people with HD.
All Enroll-HD study site locations are displayed on the study site map.
One clinic visit each year. Each visit will last 1 to 2.5 hours. Enroll-HD is an open-ended study – there is no end date.