For Study Sites and Staff
This page explains how to join the study if your site is not currently part of Enroll-HD.
Although Enroll-HD is designed to be conducted in the same way in every nation and in more than a dozen languages, each study site is unique, with its own culture, its own history and its own way of engaging with the community. The energy and hard work of the study sites is what makes Enroll-HD possible.
Learn about other sites through the Enroll! newsletter
In the Enroll! newsletter we profile study sites and their staff to help everyone around the world working on Enroll-HD get to know one another. We explored the HD center at the Columbia University Medical Center in New York City, which was for a time the highest-recruiting site for the study, to find out their secrets. The staff at Columbia has relationships with HD families that go back for decades.
We interviewed Dawn Rogers, Enroll-HD site coordinator at the University of Manchester, about how she helps her study participants feel at ease.
Check back here for more introductions to other sites and staff around the world, and find out how other sites and other coordinators manage Enroll-HD.