Category: HDBuzz RSS

The Huntington’s Disease Youth Organization’s World Congress: Supporting Young People Affected by HD

The Huntington’s Disease Youth Organization (HDYO) is an international non-profit dedicated to supporting, educating, and empowering young people up to the age of 35 who are impacted by Huntington’s Disease (HD). Founded in 2012, HDYO provides a safe space for young individuals and their families to access resources, connect with peers, and find professional support. […]

Listening for Whispers: How a Tiny Protein Could Transform HD Research

A new study bolsters our confidence that neurofilament light (NfL), a protein released by damaged brain cells, could serve as an early warning signal for Huntington’s disease (HD) progression—appearing in the blood many years before symptoms start. Tracking NfL levels may revolutionize HD research by helping predict when symptoms will appear, improving clinical trial design, […]

Wake up call: Sleep is impacted before Huntington’s disease symptoms appear

After getting a poor night’s sleep, anyone would agree that good sleep makes a huge difference in day-to-day life. (Just ask any student who has stayed up all night to cram for a test…or anyone with a newborn baby.) It’s so critical that there’s an awareness week dedicated exclusively to sleep! So during this Sleep […]

Huntington’s Disease Therapeutics Conference 2025 – Day 3

We’re back for the 3rd and final day of CHDI’s Huntington’s Disease Therapeutics Conference! New Technologies and Breakthrough Science This morning’s talks are kicking off with new technologies that have the potential of leading to breakthroughs in science for neurodegenerative diseases, like HD, and transform the field. Ross Wilson: Molecular Scissors To Chop Out CAGs […]

Huntington’s Disease Therapeutics Conference 2025 – Day 2

We’re back for day 2 of the CHDI Huntington’s Disease Therapeutics Conference! We’re kicking things off with some exciting talks on genetic modifiers and learning how we can advance them toward therapeutics for HD. Advancing Genetic Modifiers Toward Medicines Today’s session is all about genetic modifiers – genes that contribute to the age of disease […]

Huntington’s Disease Therapeutics Conference 2025 – Day 1

Hello from Palm Springs! The HDBuzz team are here and ready to report on all of the exciting science that we are going to hear over the next 3 days from HD experts who have travelled from all over the world to be at CHDI’s 20th Annual Huntington’s Disease Therapeutics Conference. Get ready to follow […]