Enroll-HD

Scientific Oversight Committee (SOC)

The SOC is the major governing committee for Enroll-HD. It is responsible for study oversight, guides scientific strategy, and ensures adherence to platform goals. It also provides scientific consultation, guidance, and platform support coordination for non-therapeutic HD studies.

Enroll-HD SOC

Committee Functions

Enroll-HD SOC

Current Members

Current members of the Enroll-HD Scientific Oversight Committee are displayed below:

Julie Stout, PhD – Committee Chair

Monash University, Melbourne, Australia

G. Bernhard Landwehrmeyer, MD, PhD, FRCP – Enroll-HD Study PI

University Hospital of Ulm, Ulm, Germany

Karen Anderson, MD

Georgetown University, Washington, DC, USA

Jean-Marc Burgunder, MD

Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland

Daniel Claasen, MD

Vanderbilt University Medical Center, Nashville, TN, USA

Mark Guttman, MD

Toronto, Ontario, Canada

Karen Marder, MD, MPH

Columbia University Medical Center, New York, NY, USA

Michael Orth, MD

Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland

Claudia Perandones, MD, MSc, PhD

National Administration of Laboratories and Institutes of Health of Argentina, Buenos Aires, Argentina

Hugh Rickards, MD

University of Birmingham, UK

Enroll-HD SOC

Coordinators

All correspondence should be directed to the committee coordinators:  

General Enroll-HD SOC enquiries:

SOC proposals:

Selene Capodarca

Enroll-HD Global Study Director

Olivia Handley

Enroll-HD Global Platform Director

Enroll-HD SOC

Resources

Researchers seeking study support should submit the following to the Enroll-HD SOC coordinator:

  • Completed Enroll-HD SOC Proposal Form,
  • Final draft protocol,
  • PI CV
  • Relevant supporting material (e.g., draft participant questionnaires, assessment scales)

The Enroll-HD SOC review determines if the non-therapeutic study or interventional non-therapeutic trial can be accepted for platform support. The review will be based on the strength of the proposal, the scientific priorities of Enroll-HD, and participant/site burden (see Enroll-HD SOC reviewer guidelines).

The review process from submission to receiving feedback typically takes 4 weeks from submission.

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