Enroll-HD
Scientific Oversight Committee (SOC)
The SOC is the major governing committee for Enroll-HD. It is responsible for study oversight, guides scientific strategy, and ensures adherence to platform goals. It also provides scientific consultation, guidance, and platform support coordination for non-therapeutic HD studies.
Enroll-HD SOC
Committee Functions
- Provides oversight of the Enroll-HD study conduct and progress
- Ensures adherence to platforms goals
- Guides scientific strategy of the Enroll-HD study
- Reviews proposals for non-therapeutic studies and interventional non-therapeutic trials seeking to use the Enroll-HD platform
- Reviews requests to utilize platform resources
- Advises on protocol development of HD clinical studies
Enroll-HD SOC
Current Members
Current members of the Enroll-HD Scientific Oversight Committee are displayed below:
Julie Stout, PhD – Committee Chair
Monash University, Melbourne, Australia
G. Bernhard Landwehrmeyer, MD, PhD, FRCP – Enroll-HD Study PI
University Hospital of Ulm, Ulm, Germany
Karen Anderson, MD
Georgetown University, Washington, DC, USA
Jean-Marc Burgunder, MD
Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland
Daniel Claassen, MD
Vanderbilt University Medical Center, Nashville, TN, USA
Mark Guttman, MD
Toronto, Ontario, Canada
Karen Marder, MD, MPH
Columbia University Medical Center, New York, NY, USA
Michael Orth, MD
Swiss HD Center at Siloah Neurocenter, Gümligen (Bern), Switzerland
Claudia Perandones, MD, MSc, PhD
National Administration of Laboratories and Institutes of Health of Argentina, Buenos Aires, Argentina
Hugh Rickards, MD
University of Birmingham, UK
Coordinators
All correspondence should be directed to the committee coordinators:
General Enroll-HD SOC enquiries:
SOC proposals:
Selene Capodarca
Olivia Handley
Resources
Researchers seeking study support should submit the following to the Enroll-HD SOC coordinator:
- Completed Enroll-HD SOC Proposal Form,
- Final draft protocol,
- PI CV
- Relevant supporting material (e.g., draft participant questionnaires, assessment scales)
The Enroll-HD SOC review determines if the non-therapeutic study or interventional non-therapeutic trial can be accepted for platform support. The review will be based on the strength of the proposal, the scientific priorities of Enroll-HD, and participant/site burden (see Enroll-HD SOC reviewer guidelines).
The review process from submission to receiving feedback typically takes 4 weeks from submission.