The Clinical Outcomes Unit at CHDI is available for scientific consultation. This Unit collaborates with academics, industry, and regulatory agencies to develop assessments that measure the impact of disease on people with Huntington’s disease and their families. Their aim is to address unmet needs across multiple domains using a range of assessment methods and modalities including patient reported outcomes, clinician reported outcomes, observer reported outcomes, and performance-based measures. Their goal is to provide reliable and valid assessments to the HD community to investigate and understand disease pathophysiology and the effects of interventions on disease progression.
Areas of expertise within the Clinical Outcomes Unit include HD assessments of function, cognition, motor, and behavior; digital measures; health economics and outcomes research (HEOR); and insight/anosognosia.