Enroll-HD RNA collection initative launched

Enroll-HD RNA collection initative launched April 12, 2024 The Enroll-HD RNA collection initiative is now active! This initiative aims to create a high-quality, longitudinal RNA collection from at least 3,000 people with HD. Individuals across all stages of the disease life-course will be included, with a primary focus on premanifest and early manifest participants. Each […]

New HDClarity periodic dataset, PDS3, now available!

New HDClarity periodic dataset, PDS3, now available! Jan 18, 2024 We are delighted to announce that the third dataset release from HDClarity, PDS3, is now available. HDClarity PDS3 contains data from 673 study participants and includes 832 study visit packages, each associated with one or more successfully collected CSF samples. HDClarity sample size by PDS […]

Enroll-HD study sites: 2012-2022 | Region; recruitment, tenure

Enroll-HD study sites: 2012-2022 | Region; recruitment, tenure July 26, 2023 Last year, Enroll-HD celebrated the 10-year anniversary of the very first participant entering the study. To celebrate this important milestone and the achievements that the community has made over the last decade, a series of events and celebrations have been held. The Enroll-HD anniversary […]

New Enroll-HD periodic dataset (PDS6) now available!

New Enroll-HD periodic dataset (PDS6) now available! Jan 9, 2023 (edited Dec 6, 2023) We are delighted to announce that the eagerly awaited sixth release of the Enroll-HD periodic dataset, PDS6, is now available. PDS6 contains data from 25,550 Enroll-HD study participants. Data from 95,040 study visits are included, making it one of the largest cohort datasets […]

Enroll-HD: Celebrating 10 years!

Enroll-HD: Celebrating 10 years! July 25, 2022 Ten years ago today, in Tennessee, the very first participant entered into Enroll-HD. Over the coming year we will be celebrating this important milestone and the remarkable achievements that, as a community, we have made over the last decade. You have been, and continue to be, essential to […]