7  Data Dictionary

7.1 Overview

This Data Dictionary is designed to accompany all Enroll-HD dataset releases, including periodic datasets (PDS) and specified datasets (SPS). Note that Enroll-HD dataset releases encompass data on Enroll-HD partcipants from several sources: Enroll-HD, REGISTRY study, and clinical data collected in adhoc visits outside of the aforementioned studies.

This document denotes each variable, including availability of the data in different types of datasets. A brief overview of constituent data sources, dataset structure, variable structure, and representation of special values is also provided.

We strongly encourage data users to thoroughly read the accompanying data support documentation for detailed descriptions of dataset structure, data quality control procedures and participant identification risk management, coding system descriptions, and data interpretation. Complete description of these important topics is out of scope of the current document.

The PDS Data Dictionary can be consulted at the PDS dataset explorer LITE.