Enroll-HD will be the world’s largest observational study for Huntington’s disease families.
It is a resource for the entire HD community, including patients, families, patient advocates, clinicians and other healthcare professionals, researchers, and anyone else who has a connection to HD. The study is designed to be a clinical research platform that will enable healthcare professionals, scientists, and families affected by HD to work together towards an improved understanding of HD and better care and new effective treatments for HD patients.
The study builds upon and unites two successful studies: COHORT in North America and Australia, and REGISTRY in Europe. Enroll-HD is also adding new participants from Latin America and New Zealand, and possibly additional regions in the future.
The first participant joined Enroll-HD on July 26th 2012 at the University of Tennessee Health Science Center in the United States.